Re: please sign

On Saturday, January 5, 2013, CJ Crennell <cjcrennell@gmail.com> wrote:
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> On Thursday, January 3, 2013, Deb Cooke on behalf of Foggy's <deb.cooke@butyoudontlooksick.co.uk> wrote:
>> Foggy's please sign this and pass it on !! http://epetitions.direct.gov.uk/petitions/43154
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>> Soft hugs and regards
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>> Deb Cooke
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>> Groups' Founder
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>> Foggy's "invisible illness" Support
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>> deb.cooke@butyoudontlooksick.co.uk
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>> www.butyoudontlooksick.co.uk
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>> </mail/u/0/s/?view=att&th=13c026caefa6a146&attid=0.1&disp=emb&zw&atsh=1>
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>> REGISTERED CHARITY No. XT36442
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>> Dedicated to promoting awareness, providing support and promoting positivity
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Season's Greetings

Not sure how much I'll be out & about in the next couple of weeks - I'm pacing myself for Christmas - so in case I don't see people, soft zen hugs & Merry Christmas to all.

Hallelujah!!!

I've finally got my new walker. It cost just over £100 but it was definitely worth it. It's easier to fold up & fit in the car, all its wheels touch the floor, & its brakes work properly. Now all I have to do is sort out the attached bags, etc & I'm ready to go, at last!

Chair Exercises

I am trying to do more exercise, I already go to the Hydrotherapy pool regularly, & my Dr has suggested 'chair exercises' - does anyone know where I can find a book/DVD or other info on chair exercises particularly for people with balance problems [I had a really bad fall this week].

Fibromyalgia Awareness Week

Fibromyalgia Awareness Week is coming up (2nd week of September) so if anyone has any links, events, etc they want to put on this blog let me know. Also if you want to find out about current research into medication for chronic pain conditions I suggest getting today's Observer, there's an article in The New Review section (p. 20-21) that is very interesting, although it doesn't mention fibromyalgia specifically. It gives some detail about research that's being done into medications related to 'nerve growth factor'.

Symptoms question

Haven't had a lot of time or energy to blog lately - I've been laid low with flu/tonsilitis just to make life even more difficult & painful.
One of the reasons I set up this blog was to raise awareness & the other was for people to share experiences & advice about Fibromyalgia & associated conditions (chronic fatigue, MS, etc). That being the case I have one tip & one question:
1. The Thamesdown Hydrotherapy Pool is a brilliant resource, I've found that it really does help with relaxing muscles & reducing pain. I would suggest asking your GP/Consultant if it's possible to get a prescription, if not you can sign on as a member of the public
2. Does anyone else suffer from strange unexplained bruises, particularly around joints, & if so do you know what causes them? I've asked various medical professionals over the years & received noncommittal shrugs & no real answers.
CJ Crennell

Bad Day

I've been suffering through a bit of a bad patch for the past couple
of days, I even had to take time off work yesterday because I was just
too exhausted & in too much pain. The worst parts are first thing in
the morning, when I sometimes think I could quite cheerfully saw my
limbs off with a rusty hacksaw because it couldn't hurt any less, &
dealing with the connected symptoms like IBS or extreme nausea. I was
wondering if anyone out there has tips for dealing with this? I also
keep trying to make it to the local foggys meetings, which in theory
is a great place to share experiences & tips, trouble is by the time
the meeting comes round I'm usually too tired &/or following the pain
management rules of prioritise, plan & pace & am having to save my
energy for some prioritised task.
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