Links for local/national fibromyalgia groups:
http://www.swindon-support.co.uk/
http://www.cylex-uk.co.uk/company/swindon-foggy's-~-the-swindon-fibromyalgia-support-group-14322684.html
Thursday, 23 June 2011
Tuesday, 21 June 2011
Design update
I will updating the design of my blog tomorrow & adding links to some
fibro/cfs sites. If anyone has any link suggestions let me know.
fibro/cfs sites. If anyone has any link suggestions let me know.
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Sent from my mobile device
Monday, 20 June 2011
Welcome to the blog
This is my first ever blog & as you can see it is still under construction. I'm hoping to have all the gadgets, pictures, etc set up within a couple of days but as anyone who suffers from fibromyalgia or CFS knows that is sometimes easier said than done.
I will be posting in the next couple of days to explain more about what Fibro & CFS are & how they can affect the lives of people who have the condition, & the lives of the people around them but for now I'll just include a brief description.
Both Fibromyalgia & CFS (Chronic Fatigue Syndrome) fall into the category of "invisible" illnesses this means you can't tell that we have it as soon as you see us, & even after you've known us for a while you might not recognise that we have the condition unless we tell you. Both CFS & Fibromyalgia have several elements in common which can have a debillitating effect on our lives. We spend much of our day in pain & exhausted, & at times we can suffer from something known as Fibro-fog it can cause us to forget things or to feel like some kind of zombie. Having Fibro or CFS means we have to pace ourselves more & prioritise what we have to do, which often means we end up not being able to do very much - & it's not because we don't want to take part it's simply that we can't. We may look like normal, young, healthy people & therefore have to suffer the odd looks when we have to ask for help getting out of a chair or the tutting from fellow bus passengers when we don't give up our seats but the fact is while our condition may be hidden it is still very much real.
I'm hoping that this blog will encourage more people to talk about Fibro & CFS & other conditions/disabilities so that we can raise awareness & help non-sufferers to understand.
I will be posting in the next couple of days to explain more about what Fibro & CFS are & how they can affect the lives of people who have the condition, & the lives of the people around them but for now I'll just include a brief description.
Both Fibromyalgia & CFS (Chronic Fatigue Syndrome) fall into the category of "invisible" illnesses this means you can't tell that we have it as soon as you see us, & even after you've known us for a while you might not recognise that we have the condition unless we tell you. Both CFS & Fibromyalgia have several elements in common which can have a debillitating effect on our lives. We spend much of our day in pain & exhausted, & at times we can suffer from something known as Fibro-fog it can cause us to forget things or to feel like some kind of zombie. Having Fibro or CFS means we have to pace ourselves more & prioritise what we have to do, which often means we end up not being able to do very much - & it's not because we don't want to take part it's simply that we can't. We may look like normal, young, healthy people & therefore have to suffer the odd looks when we have to ask for help getting out of a chair or the tutting from fellow bus passengers when we don't give up our seats but the fact is while our condition may be hidden it is still very much real.
I'm hoping that this blog will encourage more people to talk about Fibro & CFS & other conditions/disabilities so that we can raise awareness & help non-sufferers to understand.
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